Advancing Care for Individuals with Autism

By: Musunuri, S., Graves, L., Shah, P. B., M.,Kind-Rubin, Marsh, T. N., Waller, S., Somlyay, J., Nandil M. I., Yoon, M.N. Torres, N., Hansen-Turton, T., Hayden, E., Spreat, S., Mishra, A.

Woods System of Care
The Network Towards Unity for Health

Abstract

Objective: To conduct research, identify gaps in current care, and highlight key opportunities for

improving primary care for individuals with autism, ensuring that care is tailored to meet the

unique needs of this population.

Methods: A literature review was conducted to examine and analyze existing global clinical

guidelines for the primary care of individuals with autism. In addition, monthly global

consultative meetings were organized to facilitate collaboration among healthcare professionals,

and experts specializing in autism and related areas of care. These collaborative sessions focused

on synthesizing recent empirical research, expert insights, and firsthand knowledge. To facilitate

the identification of actionable opportunities for improvement, a system based on the 2018

Canadian Consensus guidelines for the Primary Care of Adults with Intellectual and

Developmental Disabilities1 was adopted.

Insights: The analysis of global clinical guidelines and related resources for autism presented

several critical gaps that hinder the effectiveness of autism care worldwide. Some of the key

issues covered in this paper include: the lack of centralized access to resources and system

navigation; limited consideration of diverse cultural and socioeconomic contexts; and inadequate

attention to the perspectives of individuals with autism. Furthermore, there is insufficient

integration of trauma-informed care, and existing guidelines often overlook the needs of adults

with autism, particularly in areas such as employment, independent living, and sexual health.

Beyond this there’s a need for better support in developing healthy social connections, including

friendships, work relationships, and intimate partnerships. The challenges faced by caregivers are

also not fully addressed. Addressing these gaps and more through inclusive, culturally sensitive,

and person- and family-centered care models present significant opportunities to improve global

support for individuals with autism.

Conclusion: This paper underscores the importance of developing more adaptable care models

that cater to the diverse needs of individuals with autism. Additionally, the paper highlights the

vital role of policy interventions in addressing systemic barriers, including raising awareness,

reducing stigma, ensuring adequate training for healthcare professionals, and improving

resources for individuals with autism, especially in adulthood. By advocating comprehensive

clinical guidelines and policy reforms, this paper aims to improve autism care globally.